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Ongoing (meta)thread about :

[1/]

"*This* is the illness we are letting rip through our community, that half of patients will end up with."

"[An patient] feels effectively the same every day as an AIDS patient feels two months before death; the only difference is that the symptoms can go on for never-ending decades."

miaow.gay/@meganeko/1084921823

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I had a physically active lifestyle & was working on my thesis before I got "mild" .

Now I'm mostly bedridden with severe and almost all of these symptoms. I can't even read books any more, let alone finish my thesis.

About 10-20% of people get long-term symptoms after COVID. Being healthy and/or vaccinated does not protect you.

Please protect yourself & others from getting infected in the first place.

PDF: investinme.org/Documents/Guide

Wiki: me-pedia.org/wiki/Internationa

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If we treated computer problems the same absurd way doctors treat people with conditions like & :

"Look, the antivirus scan was negative. There's nothing wrong with your computer. You need to work on your dysfunctional beliefs about ransomware and just start using your files regularly again."

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I'm going to start addressing groups of people with "ny'all" :blobcattea:

So... I did some "housekeeping" ~

cleaned up some dormant follows/followers; feel free to re-request if you're active again.

finally followed back some followers ^^

I still have a backlog of follow requests (though slightly smaller now), sorry ^^;

mutuals: if you'd like me to follow your alt as well, please let me know. I'm terrible at figuring out whether you're ok with that ^^;

[36/]

"Contrary to the myth that we are sliding into a comfortable […] relationship with a common-cold-like, friendly virus, this is more like being trapped on a rollercoaster in a horror film."

"Not having got after a prior infection […] offers no guarantee"

"[…] ever-growing […] rather desperate long-haulers […] well over two years"

"They need answers, treatments – and to know that we take the situation sufficiently seriously to stop creating more cases"

theguardian.com/commentisfree/

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If anyone wants accurate info about & , my ongoing thread has actual references to the peer reviewed scientific literature:

miaow.gay/@meganeko/1084939565

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I think I'll take a mountain of peer reviewed articles from journals like e.g. Nature Medicine, over the opinion of some random "doctor" on the internet. O look, here's one:

nature.com/articles/s41591-022

Oh, look, there's also the international consensus on ME/CFS: "Pathological dysregulation of the
nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport are prominent features."

investinme.org/Documents/Guide

The "doctor" is the one being "unscientific" here.

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medic.cafe

COVID denial, anti-masking & vaccine disinfo, mocking people with chronic illness (saying ME/CFS & long covid are "unscientific", comparing it to delusions). By the admin. For example:

"Trage gerne Deine FFP2, wenn es Dich beruhigt. Aber wissenschaftlich ist das, genau wie Long COVID und ME/CFS, halt eher nicht."

Translation: "Feel free to wear your FFP2 if it reassures you. But it's not scientific, just like Long COVID and ME/CFS."

"The seriousness of remains a neglected topic. Many people are seriously ill and will not recover.

Yet the coalition thinks that we do not need to inform people honestly about the risks.

It is in line with the government's policy: figure it out yourself."

[Translated from Dutch]

tweets.todon.eu/PolitiekBIJ1/s

Dutch RIVM — the [checks notes] national "public health" institute — openly admits their policy does not include preventing or :

"FFP2 masks work well against the spread of coronavirus."

"[…] no advice to wear masks to prevent the spread of the coronavirus."

Inconvenience apparently outweighs the risk of long-term chronic illness — 1 in 5 — and death: "some people may experience shortness of breath when using FFP2 masks for a long time."

tweets.todon.eu/rivm/status/15

"The underlying sense of entitlement to a woman’s body—that it must have certain parts, and that these parts must be used in accordance with patriarchal logic—means that misogyny and transphobia are deeply in cahoots with each other."

"[…] there is a common plight: a basic refusal to recognize that somebody’s body is for them and nobody else, and they should have moral jurisdiction over what it does, how it functions, and what it looks like, wherever possible."

katemanne.substack.com/p/again

"With , whatever freedom your fortunate to have evaporates over night. We’re condemning 1 in 5 infected to this imprisonment with no warning."

tweets.todon.eu/loscharlos/sta

"Contrary to the myth that we are sliding into a comfortable […] relationship with a common-cold-like, friendly virus, this is more like being trapped on a rollercoaster in a horror film."

"Not having got after a prior infection […] offers no guarantee"

"[…] ever-growing cohort of rather desperate long-haulers […] well over two years"

"They need answers, treatments – and to know that we take the situation sufficiently seriously to stop creating more cases."

theguardian.com/commentisfree/

"if you're making any SARS-CoV-2 policy, it *has to* work to protect against chronic illness."

"The same people who talked about past high efficacy of vaccines […] won't talk about the extremely high efficacy of well fitting N-95/99 masks in doing the same. Why?"

"If you asked me whether it was safer to be in a room with a vaccinated person, or one wearing an N-95/99 mask, I'd always choose the latter!"

"We need every single layer. So why just rely on one?"

tweets.todon.eu/dgurdasani1/st

"China's zero COVID strategy is planned to last years […] What does China know […] the rest of the world does not?"

"We have enough information […] is a dangerous disease, SARS-CoV-2 is an extremely dangerous pathogen, is a huge problem etc. Our policy makers decided to let it rip. It could even be we have more evidence than China now as we had all these waves"

"And we knew already in early 2020. Our policy makers decided to let SARS-CoV-2 spread"

tweets.todon.eu/elisaperego78/

"Abled people continue to be baffled by the idea that their health isn't tied to their go-getter attitude but the universe playing darts while blindfolded."

tweets.todon.eu/scribecheck/st

"The reason that the rich were so rich, Vimes reasoned, was because they managed to spend less money. Take boots, for example. […] A man who could afford fifty dollars had a pair of boots that'd still be keeping his feet dry in ten years' time, while a poor man who could only afford cheap boots would have spent a hundred dollars on boots in the same time and would still have wet feet."

en.wikipedia.org/wiki/Boots_th

not a subpost, please don't take it personally 

Reminds me of this quote about long covid: "[…] appear to be living with families and social networks who meet their plight with emaciated smiles and flittering eyes, betraying bewilderment at why they can’t simply move on with their lives (as though chronic illness were a self-destructive act of volition)."

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not a subpost, please don't take it personally 

I've gotten really sick of people wishing me a speedy recovery, essentially refusing to acknowledge chronic illness even exists. It's usually meant well, but actually hurtful. Imagine telling someone that lost a leg you hope it grows back soon.

And it's not like I can go for a walk or do anything else. All I can do is lie in bed, sit in a chair, listen to music (which is fun but still gets really boring if it's the only thing you can do all day).

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I really, really, really, hate long covid cognitive dysfunction.

I can't even focus long enough to read fedi posts atm, let alone a novel. I miss being able to read books & manga so much.

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miaow.gay

miaow ~