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"*This* is the illness we are letting rip through our community, that half of patients will end up with."

"In my experience, is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages."

"[…] if I had to choose between the two illnesses (in 2009) I would rather have HIV. But , which impacts a million people in the US alone, has had a small fraction of the research dollars directed toward it."

tweets.todon.eu/ahandvanish/st

"[An patient] feels effectively the same every day as an AIDS patient feels two months before death; the only difference is that the symptoms can go on for never-ending decades."

–Prof Mark Loveless, AIDS and ME/CFS Clinic, Oregon Health Sciences University, Congressional Briefing, 1995

NB: I'm absolutely not making light of HIV/AIDS; especially for those without access to treatment, it's still a horrible disease.

Dutch Association (translated):

"For patients with severe or very severe , life is similar to that of patients undergoing chemotherapy, patients with late-stage cancer, advanced AIDS, or severe heart failure."

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